DAY 5 MARCH 29
So a few disclaimers. If you are wondering how I picked you for the blog it was simple. Basically if I had texted you in the past couple years and I thought you might be interested I copied the link. I am not a big email fan. Text seemed easier. Plus, most people don't want to be nosy and in other people's business but they do want to know what is going on. This way you can choose to be a voyeur or not.
All the information on this blog is my opinion. I am by no means a well versed or studied individual. So take everything with a grain of salt.
I had my formal sit down consultation with my doctor today. His name is Denis Fedorenko. He is a hemotologist and actually board certified in the US. The hospital is a public university hospital here in Moscow.
As I mentioned earlier I had a battery of tests done to make sure I am an eligible candidate. Today was a review of those tests. If you want the short version. I passed and will continue the treatment!
If you want the dirty details here you go. My MS started in Spring 2016. Diagnosed with Primary Progressive Multiple Sclerosis in Summer of 2017. Only approximately 15% of MS patients have PPMS. Auto-immune disease which attacks myelin (protective coating around nerve fibres).
PPMS is problematic because it is usually located in the spine and affects coordination between the brain and body. Drugs have proven mostly ineffective for PPMS. I found out today that Ocrevus, which I tried for a year, has a mere 7% efficacy rate on PPMS. Ocrevus is one of the newest and most touted drugs to come out for MS.
I found out today that I am mostly healthy. As some of you may or may not know when I first went to the doctor in October 2016 they found that I had prostate cancer. I felt sick in the Spring of 2016 but kept waiting for the illness to go away. Finally in October I went in to see what was going on. Initially the plan was to treat the cancer and see if that took care of the problems I was having. Had surgery in March 2017 and unfortunately some cancer had escaped the prostate and I had to have follow-up radiation in Winter 2017-18. Today Dr. Fedorenko confirmed that my prostate cancer treatment was effective and I am essentially clear of cancer for now. Nice to hear that affirmed by a second source.
In the mean time with the weakness continuing I was diagnosed officially with PPMS in July 2017.
Other than the MS I look pretty good though. I have a small kidney stone in my left kidney and a cyst in my liver which apparently is not abnormal. Could be genetic. 20-30% of the population has this. All my other numbers are in the "normal" category. Healthy heart and lungs.
I first reached out to Russia in October 2017 but because the cancer was still an issue they could not accept me. In September 2018 I reached out again and was able to show the cancer treatment was complete and effective. So here I am! HSCT is shown to be 70-80% effective treating PPMS and Russia has a 0.2% mortality rate. Dr. Fedorenko was quick to say despite the tragedy they were able to learn and implement protocols and markers to guard against future complications. I know...TMI.
Here we go!
All the information on this blog is my opinion. I am by no means a well versed or studied individual. So take everything with a grain of salt.
I had my formal sit down consultation with my doctor today. His name is Denis Fedorenko. He is a hemotologist and actually board certified in the US. The hospital is a public university hospital here in Moscow.
As I mentioned earlier I had a battery of tests done to make sure I am an eligible candidate. Today was a review of those tests. If you want the short version. I passed and will continue the treatment!
If you want the dirty details here you go. My MS started in Spring 2016. Diagnosed with Primary Progressive Multiple Sclerosis in Summer of 2017. Only approximately 15% of MS patients have PPMS. Auto-immune disease which attacks myelin (protective coating around nerve fibres).
PPMS is problematic because it is usually located in the spine and affects coordination between the brain and body. Drugs have proven mostly ineffective for PPMS. I found out today that Ocrevus, which I tried for a year, has a mere 7% efficacy rate on PPMS. Ocrevus is one of the newest and most touted drugs to come out for MS.
I found out today that I am mostly healthy. As some of you may or may not know when I first went to the doctor in October 2016 they found that I had prostate cancer. I felt sick in the Spring of 2016 but kept waiting for the illness to go away. Finally in October I went in to see what was going on. Initially the plan was to treat the cancer and see if that took care of the problems I was having. Had surgery in March 2017 and unfortunately some cancer had escaped the prostate and I had to have follow-up radiation in Winter 2017-18. Today Dr. Fedorenko confirmed that my prostate cancer treatment was effective and I am essentially clear of cancer for now. Nice to hear that affirmed by a second source.
In the mean time with the weakness continuing I was diagnosed officially with PPMS in July 2017.
Other than the MS I look pretty good though. I have a small kidney stone in my left kidney and a cyst in my liver which apparently is not abnormal. Could be genetic. 20-30% of the population has this. All my other numbers are in the "normal" category. Healthy heart and lungs.
I first reached out to Russia in October 2017 but because the cancer was still an issue they could not accept me. In September 2018 I reached out again and was able to show the cancer treatment was complete and effective. So here I am! HSCT is shown to be 70-80% effective treating PPMS and Russia has a 0.2% mortality rate. Dr. Fedorenko was quick to say despite the tragedy they were able to learn and implement protocols and markers to guard against future complications. I know...TMI.
Here we go!
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| Breakfast |
Wow, loved every minute of it Paul, don’t stop sharing! I’m so encouraged and hopeful for your success doing this protocol. 0.2% is amazing! Just another confirmation for me that the U.S. is not about healing it’s about money. Woohooo! You and Lynnette are such an inspiration to me. Thanks for the update.
ReplyDeleteHi Paul...Thank you so much for sharing. I am thinking of you and sending you all of my positive energy. I will be reading every post and know that I am here for you and your family.
ReplyDelete